Hey PAH Warriors,
This blog is all about YOUR WILL, YOUR WANT, YOUR WAY!
If you are reading along it is likely that you have some sort of illness and you are looking for advice or facts that will make your life easier to manage. After 17 years of battling PAH I have learned a ton of interesting life lessons that I believe I would not have learned otherwise. If it’s ok with you I would like to share them.
Love Yourself First! For some people self-love is not an easy commitment. Maybe you're a parent, sibling, aunt or uncle, care provider etc. Maybe you have the intention to treat yourself but you forget? Whichever it is, making sure you come first everyday is a matter of life and death when you are facing a terminal illness. Consider completely changing your routine so that it allows time for nurturing yourself. Why? Without YOU there will not be shoes for you to fill. There will not be tasks that lie ahead. You can't go anywhere or do anything if you are no longer on this beautiful earth. This is the reality of people with terminal illnesses and it does not mean that you have to hide from the world or just give up. Welcome change! What things can I do to put myself first so that I can be BETTER everyday:
Sit down and drink a cup of coffee.
Read a book every night before bed.
Practice some yoga moves.
Craft something special.
Paint on a canvas and see what comes out of you.
Make a gratitude journal.
Plan a trip!
Look in the mirror often.
Dress up and go ANYWHERE!
Smile at others and give compliments. It will make your heart beat w love.
Learn to say NO. Why is this such a hard thing to do? For some reason I do not like to say NO. Does it mean I was defeated? There will be so many times on this journey that you will not be able to do what you want when you want to and accepting that is part of the new you. Personally, I feel that the sooner you accept this, the happier you will be. More than likely you will have to say:"No" because you aren't physically able to do whatever it was that you had planned. People will understand and if they don't then reconsider who you have in your life. Do they support you and make you feel good about yourself? If they don't, let go! So now your at home and your upset that you can't make it out. Keep in mind that the only thing we can control is our attitude towards the things that are happening in our life. So will you get over it and start loving yourself or will you stay angry at an invisible illness and self-sabotage?
Have it your way! Do you ever fell guilty when you are being nice to yourself? Do you accept help and compliments? In the beginning and even now, sometimes, I forget that I am living my life to please myself. Why care so much what others think? This was no easy task but through the past decade I have evolved into a person that cares more about my personal opinion vs the opinion and thoughts of others. Social media can play a huge role in this process. We are constantly letting the internet dictate our thoughts and flood our minds with other peoples posts and comments, likes and thumbs up etc. Handle YOU the way that YOU want to. If you want ice cream and Netflix, then serve it up! You have one chance to make your life the best that it can be. Now, after trying to go back to a FT job and having to leave it because of my health I clearly see that putting my health first is a priority. If you are on disability do not feel ashamed. You have an illness that not everyone could handle and you're here handling it, so dammit have it your way!